I got a call today from one of the PAs that worked with me last week at Duke. She got the results of my blood tests and she told me that my creatinine hasn’t rebounded close enough to the baseline prior to the first infusion of HD-IL2 and that we’d have to wait until next week to resume therapy. I spent some of the rest of the day in a funk, thinking that I’d somehow ended up on the interleukin short bus and was looking like a bench warmer.
About two hours later, I received an email from Leeann West, the PA that I had spoken to earlier in the day. Here’s what she said: “Mr. Venable, one thing I did not mention to you in our conversations about your lab tests is that — rarely (in fact I can only think of one patient) — do patients come back for cycle 1B after having only 1 week off. We typically give patients 2 weeks off. So I am not sure why there was talk/plans for you to come on 9/17 after having only 1 week off. But in case you thought there was something wrong, I just wanted to reassure you that we typically have two weeks off between cycles.
Thanks, and hope to see you in another week!”
Here’s what I wrote her back:
I really appreciate your taking time to ease my mind about my perceived delay in the B round of HD-IL2 therapy. From the viewpoint of a patient, this side of medicine is almost as important as the clinical issues. Too many medical professionals don’t realize this. On behalf of the patients, thank you for having a finely-honed sense of what we need, in addition to your clinical talents.
I will rest better tonight. I hope you will, too.
Thank you Leeann West, you are a credit to your profession! So, we’re going to take another week to full recuperate and take another run at it next Sunday.