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Goodbye Lance

I lost a good friend today. That friend has been with me around the clock for the last seven years. He has been a constant talisman, a guardian of sorts, protecting me in some way from a disease that is trying to take me. With the snip of a pair of scissors, I cut my yellow LIVESTRONG bracelet from the place on my right wrist that it has occupied, rain or shine, through operations, radiation treatments, infusions and needle sticks for almost 7 years. I wore that bracelet as a tribute to my hero, Lance Armstrong.

I was co-owner 0f Ride On Bikes here in Columbus, Ga. at the time I wiggled the bracelet on my arm. I wore it with the word LIVESTRONG facing out, so that all who read it might gain some of the good karma I felt it was gathering from the universe around me and allowing to flow into my body. In addition to using it in my daily fight against cancer, I gave them, sometimes with great ceremony, to others. My mother, my son, my brother, Eric, on the day he was diagnosed with the same cancer Lance had.

Like many others, I suspected Lance was doping but I chose not to believe the reports because he represented to me everything good and powerful, not only on the slopes of the Pyrenees, but in the war against cancer. When people would ask me whether or not I believed the reports of his doping, I just wouldn’t respond. He was my hero, and I just wasn’t having it. I chose to hold him up, to continue to cheer him on, to allow him to be a beacon in my personal war against cancer.

The last few days with reports from his trusted lieutenants starting to come to light, it is now obvious to me that my hero is a fallen man. I’m not as upset about the alleged doping as I am the apparent elaborate string of lies and deceit that it took to cover it up. I’m just sad about it.

Honestly, it felt very strange going toward my wrist with the scissors. Jill asked me what I was doing and as I let the blades fall on the yellow band of plastic, I said, “That’s it. I’m cutting it off. Now I’ll probably die by next week.” Like it was really a magic deterrent to death by cancer. Without nearly as much of the ceremony I have employed showing it, looking at it and sharing it, I just cut it in half and threw it in the trash.

Lance, thanks for the hours and hours of excitement you’ve given me over those awesome years of your seven Tour de France wins. Thanks for the leadership you’ve shown in the epic battle against cancer. But, dude, I’ve got to move on and I’m going to do it without you.

 

October 18, 2012 | Tagged With: Ann Venable, Columbus GA, Eric Venable, Jill Tigner, Lance Armstrong, Livestrong, Michael Venable, renal cell carcinoma, Ride on Bikes, Tour de France| Filed Under: kidney cancer | 17 Comments

NED Again, Thanks Be to God!

If you read my blog, you have heard my declarations of how damn good it is to be able to get great cancer treatment here at home. You’ve heard me say how much I appreciate the John B. Amos Cancer Center, all the people who work there, and most specially Dr. Andy Pippas and his right hand, Cindy Ivey.

Here’s another story that illustrates just how incredible the care I’ve received here has played out: You all know how important the MRI scan that I received on Tuesday was. It has been five months since my third back surgery (the one Dr. Marc Goldman did that stopped the chronic pain and essentially kept me out of a wheel chair), and about 7 months since Dr. Mike Gorum and Dr. John Cabelka  (and a host of other physicists, technicians and support staff) attempted to kill the renal cell cancer tumor in my spine. This MRI was huge! This is probably the most anxious I’ve been, because a good report would mean I might have a chance at significant, disease-free survival. On the flip, a bad report would signal the beginning of some negatively life changing other procedures or nasty drug side effects and a likely significant shortening of my potential life span.

This is how much I love the care I’m receiving here at the hands of medical professionals who also happen to be my friends. Mike Gorum has a vested interest in my life. He has performed (along with Dr. Mac Molnar) a huge spinal operation on me that culminated in the rebuilding of the vertebral body at L-2. He has watched me suffer with crippling pain and slowly begin to regain my strength and vitality.

Mike was finished with his work on Tuesday, fairly early in the day after a very early start, but he came back to the hospital to be in the room in which the technicians were administering my MRI. He literally watched the scans while they were happening. He sent me a text, “MRI clean.” That evening, Mike and his wife, Tammy, met me at Ride On Bikes and they rode with me for my first bike ride in over a year. I tried to tell them how much it meant to me to have such care and concern at a time when I may have most needed it in my life.

That is what getting treatment at home looks like. These medical professionals are our friends. They live here. They rear their children here. We see them around town at plays, restaurants and music events. If you are asked to support local medical charities, please dig deep. We need a medical school here, we need a new women’s and children’s center like the one being planned at Columbus Regional Healthcare System, we need expanded facilities at St. Francis hospital.

We have taken advantage of seeking second and third opinions (with the urging and blessings of Dr. Pippas), but if at all possible I want to be here for treatments.

I’ll get off my soap box now and tell you what I just read in my MRI report. My spine is in perfect alignment, held in place with two titanium plates and four screws, for which my insurance paid $43,000, if you can believe that! There is no evidence of metastatic disease! There are no soft tissue abnormalities present near my spine! In short, it appears the stereotactic radiosurgery that they didn’t get right at Emory, was administered perfectly here. The tumor in my spine appears to be dead and new bone is growing, thanks in part to the monthly injections of Xgeva, (http://www.xgeva.com/WT.mc_id=GooglePaidSearchBrandXgevaURL&WT.srch=1) a drug that should strengthen my bones and make it more difficult for the establishment of another renal cell metastasis.

Here is a snapshot of the history  with Renal Cell Carcinoma:

Mike Venable

59 years of age

• June 11, 2009 radical left nephrectomy + 12 lymph nodes (1 positive for RCC)

• August, 2009 ASSURE clinical trial (Sutent/Nexavar/Placebo) Ultimately completed trial.

• September, 2010 discovered 2 cm tumor in spine at L-2 and unblinded from trial (Placebo arm, thank God, but I knew that all along)

• October 21, 2010 Biopsy of spine determined the lesion is a metastatic RCC.

• December 2, 2010 Stereotactic Radiosurgery (SRS) at Emory Atlanta (went for for CT simulation on 11/17/2010)

• March, 2010: oncologist says that I’m NED.

• August, 2011: Oncologist says the tumor at L-2 wasn’t completely killed and it is growing again.

• August 19, 2011: Lumbar fusion surgery and fixation with pedicle screws and fusion with bone morphogenic protein at L 1-3.

• Three weeks post surgery, developed severe #10 back pain. Treated with time-release morphine and dilaudid for breakthrough pain.

• Awake at 4:30 a.m. on Saturday, October 8, 2011 and squatted down to remove power plug from wall socket. Complete loss of strength on right side caused me to fall over to my right.

Got to bed and called my neurosurgeon early Saturday morning. He instructed me to get to emergency department immediately. His partner, Dr. Marc Goldman met me and we went immediately to surgery, where he performed a lumbar laminectomy (bilateral inferior L1, complete bilateral L2 and bilateral superior L3). Pain was immediately gone and according to physical therapist, strength can be regained in legs with therapy, which I’m doing now.

• On Monday, October 10, I was moved by ambulance to the John B. Amos Cancer Center, where I was simulated for stereotactic radiosurgery to attempt to kill the tumor in my back. Got food poisoning from bad hotdog on Monday evening, so we delayed SRS until Thursday, October 20. 16-greys of radiation in a single one-hour treatment.

• Scans in December, 2011 show NED. Got second opinion on December 30, 2011 from Dr. Janice Dutcher at Roosevelt Hospital in New York City, NY. She advised to stay course, but would administer HDIL-2, if we wanted to try it.

• Got third opinion from Dr. Dan George at Duke University Hospital on January 11, 2012. He recommended to stay the course and said he was “guardedly optimistic” about my long-term disease-free survival.

• Scans in March, 2012 show NED.

Thank you for all your continued prayers for me and my family. I am a walking, breathing, living example of the power of prayer, good medical treatment and great attitude. Sorry for the length of this post, but I know you want to know about my latest scans.

Peace…

 

March 22, 2012 | Tagged With: Cindy Ivey, Columbus Regional Healthcare System, Dr. Andrew Pippas, Dr. John Cabelka, Dr. Mac Molnar, Dr. Marc Goldman, Dr. Mike Gorum, John B. Amos Cancer Center, metastsis, MRI, renal cell cancer, Ride on Bikes, St. Francis Hospital, Xgeva| Filed Under: kidney cancer | 47 Comments

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