These past eight months have been like heaven on earth. Eight months without vomiting. Eight months without diarrhea. Eight months of razor-sharp taste buds. Eight months of date nights with Jill. Eight months of normalcy. Eight months of cancer on the back burner. Eight months without taking a medication that costs $10,000 per month. Eight months of sunshine without being afraid of burning my skin. Eight months of the occasional taste of beer. Or wine. Or bourbon. Eight months of being able to tell people I’m doing well and eight months to thank them for their continued love and concern. Eight months of being able to work, think and contribute to our publishing company.
July 23 was the day we had a follow up appointment with Dr. Pippas to get the results of the CT scan we had the day before. What had looked like another good, stable scan took a screaming left turn when Dr. P’s eyes took in the slice that showed my left adrenal gland. We both saw the lump at the same time.
Three years ago, a discovery like this would have set me on my ear. But, these last three years have turned me into a tough sonofabitch. Yeah, I got a lump in my throat about the same size as that tumor. Yes, I could feel the dampness in the pits of my arms. Even before I knew what needed to happen next, I knew that when cancer’s in the house, ain’t nothing good comin’ from it.
Then Dr. Pippas did what he does best. He pushed back in his chair and we talked. With a waiting room full of patients, we talked. With treatment rooms full of patients, we talked. He gave Jill and me as much time as we needed to get our heads around the fact that some drugging, some cutting, some irradiating or some other, yet unknown medical torture, was about to visited onto our family in general and onto me specifically. He gave us time to see this new challenge from every angle while we were still in the room with him and able to ask questions of the leader of our medical dream team.
Dr. Pippas said he thought surgery was my best option. “Local disease requires a local treatment. Systemic disease requires systemic treatment,” Andy would always say. So we planned to scan again in five weeks time to see if the tumor was moving fast or hanging back, growing slowly like my disease has pretty much always done. We left his office feeling like a surgery to take out the adrenal gland would be a piece of cake. Probably a robotic, laparoscopic kind of thing that I would get over quickly and get behind me.
I made a decision to consult with Dr. Andy Roddenberry at St. Francis Hospital. He is a young surgeon. Full of promise and not full of himself, which made me instantly like him. I wasn’t real thrilled with what he told me, though. Dr. Roddenberry is a skilled surgeon and after a good bit of discussion, he concluded that if we wanted him to perform the surgery, he would begin the procedure hoping for a minimally invasive operation, but we needed to know the surgery would likely not be able to be completed that way.
There is considerable scar tissue left over from the massive nephrectomy that cost me my left kidney, twelve lymph nodes and a lot of digging around looking for cancer. Additionally, the organs in my body have recognized that there is some stuff missing now that used to be there and they’ve wiggled around and taken up that space in my abdomen. So, scarring, colon, pancreas and a mass of arteries and veins are all congregated in that area, as well as a vascular renal cell tumor that is very much like a 2cm bubble of blood inside the thinnest tissue paper you can imagine. The surgery has been described to me like a person trying to pick up a balloon full of blood with razor sharp pins. One prick of that bubble and I’ve got cancer cells released all over my body and my prognosis suddenly would take a big turn for the worse.
That surgery, if it turned into an open procedure, would land me five to six days in the hospital and would require about a six-week recovery. UGH! I’ve been doing research. Asking questions of people I felt might have answers. We have been fearful of a surgical option because of my weakened immune system. Andy Roddenberry explained the concerns of surgery with a weak immune system better than I have ever heard it explained.
I know this post is getting long, but I’m on a roll now and you can just close your tablet and go to bed if you’re tired of me.
Here’s what Andy Roddenberry said. “Chances are that you have small clumps of cancer cells in other places in your body. Your immune system is standing guard over them and keeping them in check. Then, you get a big 10″ incision across your belly and suddenly those immune system guard cells leave their post and race over to the site of the incision to help your body heal. The cancer cells are left alone and they have the chance to begin to grow unchecked.” That makes a hell of a lot of sense to me. Suddenly, surgery isn’t such an elegant solution to my problem.
A couple of weeks after our meeting with Andy Roddenberry, I got a call from a radiologist friend of mine who suggested that we take a look at microwave ablation as a course of action. We met with a young interventional radiologist at Midtown Medical Center named Dr. Nishant deQuadros. Much like Dr. Roddenberry, Dr. deQuadros took us through our options in a calm, thorough discussion. We left his office feeling good about him and interested in the possibility of a minimally invasive option to remove this tumor.
In the meantime, last Friday I got a phone call from Dr. Pippas. He wanted to discuss our last office visit and his comments about surgery being my best option. After a great deal of thought, he said he wanted me to look at another option than surgery. He felt surgery would be better left as a next step, after a less invasive attempt to remove the lesion.
So, we’ve listened to all of these experts and have come to a decision. We’ve made plans to go the microwave ablation route this coming Thursday, August 28. The plan is for me to spend one day in the hospital and if all goes well, I’ll be back at work on Monday, September 2. I’m nervous, not so much about the procedure, but that this disease might be about to kick it up a notch. I have enjoyed these last eight months and I want to keep living just like that — free.
So, don’t give up on me. Keep the prayers coming and pray that the microwave ablation is a success and that it kills the only remaining disease within my body.
Now, let’s go kick cancer’s ass for the seventh time!
1) nephrectomy, 2) metastasis in spine, 3) radiosurgery in spine, 4) metastasis in spine #2, 5) radiosurgery in spine #2, 6) chemotherapy, 7) microwave ablation
You got this, Mike! You are such an inspiration. You continue to be in my prayers daily.
Mike, I am so sorry that you have to go through one more thing! It does sound like you chose the best option. You are a fighter and I know that God will see you through this. You and Jill are in my prayers and on my heart!!! Love to both of you!!!
Y’all are amazing!!!!
Your attitudes, et al. Just amazing. Prayers continued!
Dr. DeQuadros is a genius. So glad he is now involved in your treatment.
Prayers are sent. I am so happy that you have options. Sounds like your Docs are on top of this. We know that cancer is a sneaky disease. Enjoy and be thankful for the good days, Gene & I pray that you have many, many more.
Your story shows that attitude is so important in this fight. You got this Mike!
Dear Mike and Jill,
I’m convinced you’ll come thru this one with flying colors. You’ve done it before, you’ll do it again.
Hang tight.
As always, reading every word you write and tightening up my prayers for your upcoming challenges. God bless you both and your dream team of doctors.
I won’t stop reading…
I won’t stop thanking God for all He’s done.
I won’t stop praying and asking for more.
You’re my hero. You and Jill are a beautiful couple.
When this is all over, and it will be, I want you to take all of your blogs, beginning to end, and publish them in a book. Your “kiss my ass, cancer” attitude is phenomenal and is such an inspiration to cancer (as well as non cancer) patients everywhere. Thank you, Mike, for your courage, perseverance and love for us to share your journey.
God bless you and Jill.
Mike,
You are a relentless warrior who’s spirit and determination I admire greatly. Praying for a successful procedure .
I’m so sorry your battle continues but you’ll be victorious! Sending prayers & hugs to you & Jill.
Thinking of you and praying that all will be well with your procedure. You are definitely a trooper. I don’t personally know you, but I have been friends with Jill and Melanie my whole life. I am acquainted with your wonderful parents, through Rosehill Church of Christ. You both are in my thoughts as you face another step toward your FULL recovery. God bless you both.
Mike, my thoughts and prayers are with you and Jill!
Y’all have only begun to fight! You and Jill are in our daily prayers by name.
It comes like a thief in the night. Hang strong and lean on him who knows all.
We are thankful for your posts, we care,we pray.
Thanks for the post, Mike. I do care about how you’re doing. You remain in my prayers every day. Buckle on your gunbelt on jump into this fight one more time. ‘Got your back.
Mike, we know you too well. I can’t imagine anybody giving up on you. The war is not over. Your family members in Florida love you, Mike. KEEP FIGHTING!
Thank you so much for sharing this with all of those who love you. Thank you for being the guy that understands that sharing when you are scared doesn’t make you weaker, it makes you stronger. Thank you for not shutting Jill out. Thank you for being funny while you’re being sad. Thank you for sharing about your armpits. I will pray for you both with much love and admiration (not because I think you’re more awesome than other people, even though you are, but because you are way honest).
Mike and Jill,
We think of you often and pray for you daily. I love reading your blog! You are such an inspiration. So glad you have each other to lean on. Love you both!
Mike and Jill, keeping you both close in prayer. We were very impressed with Dr D also. You are in good hands and the greatest physician of all will once again take care of you. Keep the faith! Love you guys.
Mike, I haven’t talked to you or seen you in awhile. Please know that you and Jill are in my thoughts and prayers. You are never selfish in your comments. It must take great courage and strength to handle all that you are dealing with. You’re a fighter and I know you will beat this. You have so many people praying for you. There is great power in prayer. God bless you and your family. P.S. I love your blog!
Best wishes for the ‘microwave ablation’, and – obviously – keep us posted. I just “Googled” ‘ablation’, by the way. Thanks for filling us in, and am grateful you have the medical professionals from Dr. Pippas on giving you such thoughtful advice. Sure am sorry you have to go through all this, though.
I agree with Debbie Seeley – looking forward to the book. As a nurse dealing with patients, diseases and doctors for almost 40 years now your blog especially this last posting reminds me that the patient is their best advocate. I am so proud of you and the others I know that seek out the information for themselves. We have experts such as oncologists and surgeons to guide us but the patient is the best advocate and decision maker for their life goals and future. Love, prayers and strength for you and your family.
You are in my prayers,my friend.
Mikey, thank you for the update. Certainly we will pray. Thanks for your honesty, determination and basically for being Mikey. Dr. Roddenberry saved my dad’s life in 2010. I’m glad you consulted with him, and also explored options. I’m grateful for these eight months of freedom for you!, and will continue in this fight with you and Jill.
Continued prayers for you, Mike! Like I have said before and I will say it again, “You are my hero” and an inspiration to all.
Full support, love and prayers. You can do it……
Praying for you. Sounds like you have the “Dream Team” working on your behalf.
As a fellow kidney cancer survivor, I applaud your neverending strength and determination to keep RCC at bay! You are an inspiration, Mike! I have followed your blog for quite some time now and look forward to your “all clear” entry!
Mike you keep on keeping on kicking that cancers ass! You have gone a pretty good job so far! Keep up the good work! Love you !
Put a boot in cancer’s big ole a**! Prayers for complete success.
Mike,
Just saw your post on FB and was wondering what was going on with you. Went to this website and saw your article. Please know that you and Jill are in our prayers. Asking God for complete healing!