Jill and I met with Dr. Pippas and my latest CT scans this week. We heard some good news: looks like my scans are stable. And, we heard some scary news: my colon and my gallbladder are both extremely inflamed, painful and uncomfortable, probably due to several months of daily 60-milligram doses of Cabometyx, a powerful tyrosine kinase inhibitor cancer drug. I am weighing in at around 180 pounds, 80 pounds short of where I was when I took my first dose. I can’t eat. I throw up several times every day. Diarrhea is a daily occurrence and I am scared to death that the tumor in my spine is going to bust loose on me again and do what it can to take my legs from me.
So, that’s what is going on in my world. It is frightening as hell and I wouldn’t wish this on my worst enemy. But, you know me, and my attitude is strong. I pray every day for healing for myself and others who are in this damned boat with me. Specifically, this is what I’m praying for: I need this tumor to get small enough to make the way clear for me to have spine stabilizing surgery and also radiation. I’m sending these latest scans to Dallas, Tex. to the University of Texas Southwestern Medical Center to be reviewed by a surgery/radiation team. I’m also sending them to Munich, Germany to Dr. Michael Kaehler, a renowned kidney cancer surgeon who has taken me on — thanks be to God.
I haven’t posted in quite a while, so I am letting all my readers know that I’m still kicking. I hope you will give me some room as I try to work my way through these latest trials and tribulations. My zest for communication has worn thin. I know it will return, and I hope you’ll join me when it does.